We're On The Train to Bangkok
Aboard the Thailand Express
We'll Hit the Stops Along the Way
We Only stop for the Best...
So the Parkinson's Disease Foundation (PDF), merged with the National Parkinson's Foundation (NPF) to become the Parkinson's Foundation. If you have been following this blog, then you know that I am a Parkinson's Advocates In Research (PAIR) with PDF.
On October 1, I volunteered at the Partners In Parkinson's event at the Jacob Javits Center and sat at the PDF table which was next to the NPF table. It was nice speaking with fellow patients and their family members about PDF.
As far as the rest of the day, I did not learn anything earth shattering. It was, however, comforting to hear my story echoed by others. In short, I was not the only one who was diagnosed with carpal tunnel and wasted time in physical therapy for problem that I did not have.
On November 9 and 10, I will join other patients at the PDF office and speak to representatives of a pharmaceutical company in order to advise them on an upcoming clinical trial.
Wow! This was my most boring post ever! Consider it to be merely an update
You may ask, "what is with the rush song?" Well, I guess that it is my way of conveying that I am on this trip with Parkinson's and along the way, I will stop wherever my doctor tells me to and try anything that might help to slow the progression of the disease. If she says so, I will try the nicotine patch, medical marijuana or anything else that just might help...
