Today is the 109th day of taking a full dose of Azilect and the 1st day of taking a 1.5 mg dose of Pramipexole (after 68 days on a .75 mg dose).
Tomorrow is my second appointment with the Movement Disorder Specialist. My doctor offered to allow my wife to attend this appointment and Kate is going to take her up on the offer. At my first visit, the doctor told me that the best case scenario is that they get my medication adjusted to the point that I could be symptom-free for the rest of my life. Kate is preparing some questions for tomorrow and her number one question is, "Now that we know the best case scenario, what is the worst?" I do not have much to add on this topic other than to indicate that I am also interested in the doctors answer.
Now that I have gone from .75 mg of pramipexole to 1.5 mg, I am hoping for better results. For example, while my arm is now hanging down at my side, as opposed to being continuously flexed and glued to the right side of my body, I would like it to swing more naturally. I would also like my shuffling gait, which has improved, to go away entirely. As I have mentioned several times prior in this blog, at least my toes have stopped curlinging under! I also seem to be gaining back my sense of smell. Could this be from the drugs? As far as muscle tightness is concerned, my lower back and glutes are killing me. I am wondering there is anything that can be done as far a needling or acupuncture that my insurance would cover. The above issues will all make for good questions tomorrow.
On other news, a new study provides some evidence that a drug used to treat leukemia may actually reverse the effects of Parkinson's.
"The study marks the first time a therapy appears to reverse the “cognitive and motor decline in patients with these neuro-degenerative disorders,” Fernando Pagan, a neurology professor who helped oversee the trial at Georgetown University Hospital, said in the statement."
I personally, am not holding out hope for a cure. I think that it is much more realistic to hope for a new drug that will provide symptom relief and therefore, this study seems very promising to me.
More tomorrow…
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