Wednesday, September 23, 2015

Fox Insight Program

Day 60

Today is the 51st day of taking a full dose of Azilect and the 10th day on a full dose of Pramipexole.

Yesterday, after watching the Fox Foundation Webinar, I signed up for the Fox Insight program. It is

"an online research study to gather the world’s largest collection of data about life with Parkinson’s. Whether you have PD or not, your information – held safe and confidential"

Basically, you answer a questionnaire about your health, height, weight, symptoms and medications and check in every 90 days so that the online system can track your progress. This data, minus your personal info, can potentially be shared with hundreds of researchers.

I am also on the shortlist for next year when the Fox Insight Wearables program comes out with a device for the iPhone! Basically, it is watch that does everything that the Apple watch does, but also sends info on your medication, gate, heart rate, etc in real time to hundreds of researchers. This has incredible potential to improve the lives of Parkinson's patients. Imagine being able to record the improvement of a patients arm swing after X number of days on a particular medication? I am really excited about this!

Today, my right arm is swinging more naturally and other than feeling a little jittery (plus another inconvienant, but not really unpleasant issue) there are no troublesome side effects.

As a bonus, I am finding that since my diagnosis, I have stopped sweating the small stuff like when the schedulers at NYU fcuk up my appointments.

2 comments:

  1. i was diagnosed of parkinson disease 5 years ago,i started azilect,then mirapex as the disease progressed in february last year,and i started on parkinson disease Herbal medicine from ultimate herbal home,few months into the treatment i made a significant recovery,almost all my symptoms are gone,great improvement with my movement and balance,it been a year and life has been so good for me,contact them at ultimatehealthhome@gmail.com

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  2. my dad was diagnosed with Parkinson’s disease.his symptoms were shuffling of feet,slurred speech,degradation of hand writing, horrible driving skills, right arm held at 46 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure from ULTIMATE LIFE CLINIC, he now walks properly and all symptoms has reversed, he was having trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which really helped him a lot,the biggest helped we had was ultimate life clinic they walked us through the proper steps,i recommended this www.ultimatelifeclinic.com to anyone who also needs help.

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